When you have a chronic illness, it starts to become the core of your being. It becomes hard to not let your illness define you, to actually live a life. It also becomes hard to explain your experiences to your healthy friends and family and I’m somewhat glad that I have friends with similar experiences for support (though I am not thankful they also have to live with these struggles.)
I’m not sure when I first heard about the interactive narrative tool, Twine, but from the start I had a feeling that, as someone who wants to get into game narrative, it was the kind of thing I’d want to experiment with. My first idea was based around chronic illness, and trying to illustrate what life is when you have one.
And so, I created Bloom.
Over the past couple weeks I have consistently come up against walls put up by the biggest challenge of my young life: my illness. It comes and goes in waves, as many of life’s struggles do. One week I might wake up earlier than usual. I won’t get exhausted from showering and dressing and getting generally ready for my day. I’ll be productive, and best of all I’ll be optimistic.
The next week: sleep becomes a struggle, but waking up is like pulling myself from a tar pit. I’ll collapse onto my bed after getting ready and I won’t have the energy to move for another hour. I might have to stop making breakfast halfway through and lie down on the kitchen floor, the world dim and muffled. This, unfortunately, has been the entirety of March for me so far.
Chronic fatigue is balls.
As I write this post I’m making pizza. Is this relevant at all? Well, no. And yes. I’m making it as a celebration of sorts, because right now I feel like a real person.
When I was young, my mum used to make pizza as a treat. I don’t know how she made it, but I’ve never had anything like her dough since. When I was sick I would always ask her to make her pizza for dinner, because somehow it always made me better again. In a way, that’s what I’m going for. But also, I just really love pizza.
Most of my life I’ve been an insomniac. I don’t have the nice kind of insomnia that only pops around a couple times a year for a day or two, but the real serious kind where I can go over a week without sleep. That’s fine, I’m used to it. You grow up learning to deal with the sleepless nights and foggy days. It becomes normal.